Our Chapter offers a full range of services to guide and assist you as you learn more about ALS. Here you will find pertinent information for patients, caregivers, family members, friends and healthcare workers. Our staff is here Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information click here
The Massachusetts Chapter
provides Care Services at no cost to
ALS patients and families. You may
register with the Chapter by contacting the Chapter office at 781-255-8884. Care
Services Coordinators provide information, support, and referrals to community
resources. We work closely with the
patient, and their medical team to coordinate care and identify resources.
Massachusetts Chapter Care Services Programs:
Your Care Services
Coordinator will visit you in your home to get to know you and discuss your
questions regarding Chapter programs, ALS Clinics, planning, insurance,
resources, disease management and home accessibility.
The Massachusetts Chapter Grant Program assists Massachusetts families with expenses incurred on or after 2/1/2018 that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid (Mass Health), and other assistance programs. It will cover respite, travel costs related to ALS clinics or research, generators, durable medical equipment repairs and personal emergency response systems.
- Applicants must be a resident of Massachusetts in order to qualify
- Applicants must be fully registered with the Massachusetts Chapter. If you are not sure if you are registered, contact the Chapter office.
- Applicants are eligible for a $500 grant once a year.
- Expenses must be directly related to ALS or PLS diagnosis. See "Eligible ALS Expense List"
Steps for Applying for a Chapter Grant
Download Grant Application
(download form to complete and fax, email, or mail to us)
Pete Frates Home Health Initiative
We are committed to continually assessing the needs of people with ALS and identifying resources and opportunities that may help them address issues related to living with the disease. The Pete Frates Home Health Initiative is a program to provide grants to allow patients to receive at no cost the services of skilled and/or custodial caregivers. Patients must be registered with the Massachusetts Chapter.
The application must be fully completed and returned to the Massachusetts Chapter (see options below). Click HERE for program criteria. Click HERE for the application.
The ALS Association Massachusetts Chapter
685 Canton Street, Suite 103
Norwood, MA 02062
WE ARE NOT ACCEPTING NEW APPLICATIONS AT THIS TIME
The Chapter offers monthly support groups that provide an opportunity for patients, family members, careivers and friends to come together to share stoies, hear the experiences of other people living with ALS and gather information. A variety of speakers are scheduled throughout the year to increase your knowledge about community resources, research and effective strategies for living with ALS.
Insurance & Benefits Counseling
Two Chapter Care Services Coordinators are certified SHINE counselors and offer
information regarding Massachusetts Health Care insurance plans, Medicare and
SSDI and to connect you to community resources, and health care options.
Family & Care Giver Support
Chapter provides support to the ALS Family and ALS Care Givers. Telephone support groups are scheduled during
evening hours to allow Care Givers to call in from anywhere in the state.
Mel Kornbliet Durable Medical Equipment Loan closet
The Chapter loan program provides, at no
cost, a wide range of medical equipment to assist in mobility, communication,
and activities of daily living. Contact
your Care Services Coordinator for more information.
Re-utilization ramp loan program
The Chapter collaborates with AmRamp to install ADA compliant ramps for
registered ALS patients. Contact your
Care Services Coordinator for more information.
Technology and Communication Support
The Chapter provides in-home support for both the ALS patient and
their caregivers who need assistance with communication devices or learning
communication strategies. Training is provided by the Chapter’s Speech and
The Chapter hosts annual
Symposiums for professionals and ALS families; and educational in-services are
provided to nursing homes, visiting nurses associations, hospice agencies, and
community organizations. Guest speakers provide education at all Chapter
Curt & Shonda Shilling ALS Clinic
The Chapter’s certified ALS Multidisciplinary Center of Excellence is
held twice each month at the Lahey Clinic in Burlington, MA.
The Care Connection
A program which brings family and volunteers together to assist persons with ALS, and their family caregivers.
Hope Loves Company
A no-cost Summer Camp for Children or Grandchildren who have or have lost a parent or grandparent to ALS. This camp is facilitated by professional camp counselors with experience with ALS families and their children.
Leonard Florence Center for Living
The center is the country's first urban model skilled nursing Green House, which cares for more individuals with ALS than anywhere else in the world. Showcased in revolutionary technology, residents can open doors, turn up or down their bedroom shades, adjust room temperatures or call for the elevator - with the help of a computer and sensor that tracks head and eye movements for instruction. The houses feature spacious private rooms/baths, open kitchens, fireplaced living rooms and welcoming gathering spaces such as a European day spa, deli, cafe, and library. The Center provides compassionate skilled nursing care in a nurturing home environment, enabling residents to live as independently as possible. Medicare and Medicaid are acepted as well as many third party insurance companies. Click here for more information.
If you have any questions regarding our local services, please contact:
CARE SERVICES STAFF, BY COUNTIES
Eileen Garry - email@example.com, 781-255-8884, ext. 240
Barnstable, Bristol, Norfolk, Plymouth, Suffolk
Shannon Sullivan - firstname.lastname@example.org, 508-963-5091
Berkshire, Franklin, Hampden, Hampshire, Worcester, Middlesex
Elisabeth Dolloff - email@example.com, 781-255-8884, ext. 249
Remember that our skilled staff of care services is here to support you and your family every step of the way.
Providing care today. Supporting hope for tomorrow.