Care Services

Our Chapter offers a full range of services to guide and assist you as you learn more about ALS. Here you will find pertinent information for patients, caregivers, family members, friends and healthcare workers. Our staff is here Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information click here

The Massachusetts Chapter provides Care Services at no cost to ALS patients and families.  You may register with the Chapter by contacting the Chapter office at 781-255-8884. Care Services Coordinators provide information, support, and referrals to community resources.  We work closely with the patient, and their medical team to coordinate care and identify resources.

 

 Massachusetts Chapter Care Services Programs:   

Home Visits

Your Care Services Coordinator will visit you in your home to get to know you and discuss your questions regarding Chapter programs, ALS Clinics, planning, insurance, resources, disease management and home accessibility.

 

Pete Frates Home Health Initiative

We are committed to continually assessing the needs of people with ALS and identifying resources and opportunities that may help them address issues related to living with the disease. The Pete Frates Home Health Initiative is a program to provide grants to allow patients to receive at no cost the services of skilled and/or custodial caregivers. Patients must be registered with the Massachusetts Chapter.

The application must be fully completed and returned to the Massachusetts Chapter (see options below). Click HERE for program criteria. Click HERE for the application.

The ALS Association Massachusetts Chapter

685 Canton Street, Suite 103
Norwood, MA 02062
Fax: 781-255-8811
Email: info@als-ma.org


Support Groups

The Chapter offers monthly support groups that provide an opportunity for patients, family members, careivers and friends to come together to share stoies, hear the experiences of other people living with ALS and gather information. A variety of speakers are scheduled throughout the year to increase your knowledge about community resources, research and effective strategies for living with ALS.

 

Insurance & Benefits Counseling

Two Chapter Care Services Coordinators are certified SHINE counselors and offer information regarding Massachusetts Health Care insurance plans, Medicare and SSDI and to connect you to community resources, and health care options.

 

Family & Care Giver Support

 The Chapter provides support to the ALS Family and ALS Care Givers.  Telephone support groups are scheduled during evening hours to allow Care Givers to call in from anywhere in the state.

 

The Mel Kornbliet Durable Medical Equipment Loan closet

The Chapter loan program provides, at no cost, a wide range of medical equipment to assist in mobility, communication, and activities of daily living.  Contact your Care Services Coordinator for more information.

 

AmRamp Re-utilization ramp loan program

The Chapter collaborates with AmRamp to install ADA compliant ramps for registered ALS patients.  Contact your Care Services Coordinator for more information.

 

Assistive Technology and Communication Support

The Chapter provides in-home support for both the ALS patient and their caregivers who need assistance with communication devices or learning communication strategies. Training is provided by the Chapter’s Speech and Language Pathologist.

 

Education

The Chapter hosts annual Symposiums for professionals and ALS families; and educational in-services are provided to nursing homes, visiting nurses associations, hospice agencies, and community organizations. Guest speakers provide education at all Chapter Support Groups.

 

The Curt & Shonda Shilling ALS Clinic

The Chapter’s certified ALS Multidisciplinary Center of Excellence is held twice each month at the Lahey Clinic in Burlington, MA.

 

The Care Connection

A program which brings family and volunteers together to assist persons with ALS, and their family caregivers.

 

Hope Loves Company

A no-cost Summer Camp for Children or Grandchildren who have or have lost a parent or grandparent to ALS.  This camp is facilitated by professional camp counselors with experience with ALS families and their children.


Leonard Florence Center for Living

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The center is the country's first urban model skilled nursing Green House, which cares for more individuals with ALS than anywhere else in the world. Showcased in revolutionary technology, residents can open doors, turn up or down their bedroom shades, adjust room temperatures or call for the elevator - with the help of a computer and sensor that tracks head and eye movements for instruction. The houses feature spacious private rooms/baths, open kitchens, fireplaced living rooms and welcoming gathering spaces such as a European day spa, deli, cafe, and library. The Center provides compassionate skilled nursing care in a nurturing home environment, enabling residents to live as independently as possible. Medicare and Medicaid are acepted as well as many third party insurance companies.  

https://chelseajewish.org/senior-living-and-short-term-rehabilitation/long-term-rehabilitation/skilled-nursing-care-green-house-chelsea/als-and-multiple-sclerosis/

 

 If you have any questions regarding our local services, please contact:

 

CARE SERVICES STAFF, BY COUNTIES

Karen Baker - karen.baker@als-ma.org, 781-255-8884, ext. 239
Essex, Suffolk

Eileen Garry eileen.garry@als-ma.org, 781-255-8884, ext. 240
Barnstable, Bristol, Norfolk, Plymouth, Suffolk (Boston)

Shannon Sullivan - shannon.sullivan@als-ma.org, 508-963-5091

Berkshire, Franklin, Hampden, Hampshire, Worcester

MIDDLESEX COUNTY

If a patient at Lahey Hospital & Medical Center - contact Karen Baker

If a patient at UMass Memorial Medical Center Worcester - contact Shannon Sullivan

If newly diagnosed at another facility - contact Karen Baker

 

 

Remember that our skilled staff of social workers is here to support you and your family every step of the way.

Providing care today.  Supporting hope for tomorrow.