Statewide Community Groups

 

 

Support groups for patients and caregivers are excellent forums for sharing information and receiving emotional support.

Qualified professionals lead each group and often include speakers who focus on all aspects of the disease. 

 

 **Updated March 18, 2020: Please note that until further notice all Community Groups will be held virtually. For specific information about dates, times, and call in information for your local group, please refer to the informational list below or visit our Facebook page. **

 

 

COMMUNITY GROUPS

 

SOUTH SHORE

When: 3rd Wednesday of each month; 1:30-3:30PM

Join Zoom Meeting (Click link)https://us02web.zoom.us/j/95958379591

Meeting ID: 959 5837 9591

Call In: Dial (646) 558-8656

Meeting ID: 95958379591#

Contact: Kaitlin Lapham - Kaitlin.Lapham@als-ma.org, 240-320-3526

 

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CENTRAL MASS

When: 1st Friday of every month; 12:00-1:30PM

Zoom Meeting (Click link): https://us02web.zoom.us/j/938593095

Meeting ID: 938 593 095

Call In: Dial (646) 558-8656

Meeting ID: 938593095#

Contact: Shannon Sullivan - Shannon.Sullivan@als-ma.org, 508-963-5091

 

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WESTERN MASS

When: 2nd Thursday of each month; 2:30-4:00PM 

Zoom Meeting: https://us02web.zoom.us/j/608981870

Meeting ID: 608 981 870

Call In: Dial (646) 558-8656

Meeting ID: 608981870#

Contact: Shannon Sullivan - ShannonSullivan@als-ma.org, 508-963-5091

 

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NORTH SHORE

When: 3rd Wednesday of each month; 1:00 - 3:00PM

Zoom Meeting: https://us02web.zoom.us/j/89509021093

Meeting ID: 634 720 9286

Call-in Number: Dial (646) 558-8656

Meeting ID: 89509021093#

Contact: Melissa Daly - Melissa.Daly@als-ma.org, 781-234-8172

 

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MIDDLESEX COUNTY

When: 3rd Friday of each month; 10AM-12PM

Zoom Meeting: https://us02web.zoom.us/j/99282660687 

Meeting ID: 992 8266 0687

Call In: Dial (646) 558-8656

Meeting ID: 99282660687#

Contact: John Adebayo - John.Adebayo@als-ma.org781-234-4054

 

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CAREGIVER TELEPHONE

When: Every other month - see ALSAMA Facebook page for details; 7:00-8:00PM

Zoom Meeting: https://us02web.zoom.us/j/608981870 

Meeting ID: 608 981 870

Call In: Dial (646) 558-8656

Meeting ID: 608981870#

Contact: Shannon Sullivan - Shannon.Sullivan@als-ma.org, 508-963-5091

 

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ALS GENETIC TELEPHONE

When: 4th Monday of even months; 6:30-7:30PM

Where: https://global.gotomeeting.com/join/596827893 to join via computer, tablet, or smartphone 

OR

You can also dial in using your phone: (571) 317-3112

Passcode: 596-827-893

Contact for Details: RSVP to Lauren Baldwin, MS, CGC - lbaldwin@alsnc.org, 877-568-4347

 

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FTD/ALS CAREGIVER TELEPHONE

When: 2nd Tuesday of each month; 3:00-4:30PM

Where: N/A - telephone meeting

Contact for Details: Bridget Moran-McCabe, MPH - bmoran-mccabe@theaftd.org, 267-758-8653