Care Services

Our Chapter offers a full range of services to guide and assist you as you learn more about ALS. Here you will find pertinent information for patients, caregivers, family members, friends and healthcare workers. Our staff is here Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information click here

 

 

The Massachusetts Chapter provides Care Services at no cost to ALS patients and families.  You may register with the Chapter by contacting the Chapter office at 781-255-8884. Care Services Coordinators provide information, support, and referrals to community resources.  We work closely with the patient, and their medical team to coordinate care and identify resources.

 

 Massachusetts Chapter Care Services Programs:   

Home Visits

Your Care Services Coordinator will visit you in your home to get to know you and discuss your questions regarding Chapter programs, ALS Clinics, planning, insurance, resources, disease management and home accessibility.

Support Groups

Your Care Services Coordinator will visit you in your home to get to know you and discuss your questions regarding Chapter programs, ALS Clinics, planning, insurance, resources, disease management and home accessibility.

Insurance & Benefits Counseling

Two Chapter Care Services Coordinators are certified SHINE counselors and offer information regarding Massachusetts Health Care insurance plans, Medicare and SSDI and to connect you to community resources, and health care options.

Family & Care Giver Support

 The Chapter provides support to the ALS Family and ALS Care Givers.  Telephone support groups are scheduled during evening hours to allow Care Givers to call in from anywhere in the state.

The Mel Kornbliet Durable Medical Equipment Loan closet

The Chapter loan program provides, at no cost, a wide range of medical equipment to assist in mobility, communication, and activities of daily living.  Contact your Care Services Coordinator for more information.

AmRamp Re-utilization ramp loan program

The Chapter collaborates with AmRamp to install ADA compliant ramps for registered ALS patients.  Contact your Care Services Coordinator for more information.

Assistive Technology and Communication Support

The Chapter provides in-home support for both the ALS patient and their caregivers who need assistance with communication devices or learning communication strategies. Training is provided by the Chapter’s Speech and Language Pathologist.

Education

The Chapter hosts annual Symposiums for professionals and ALS families; and educational in-services are provided to nursing homes, visiting nurses associations, hospice agencies, and community organizations. Guest speakers provide education at all Chapter Support Groups.

The Curt & Shonda Shilling ALS Clinic

The Chapter’s certified ALS Multidisciplinary Center of Excellence is held twice each month at the Lahey Clinic in Burlington, MA.

The Care Connection

A program which brings family and volunteers together to assist persons with ALS, and their family caregivers.

Hope Loves Company

A no-cost Summer Camp for Children or Grandchildren who have or have lost a parent or grandparent to ALS.  This camp is facilitated by professional camp counselors with experience with ALS families and their children.

 

In you have any questions regarding our local services, please contact:

 

CARE SERVICES STAFF, BY COUNTIES

Jan Obermann - jan.obermann@als-ma.org, 781-255-8884, ext. 240

Middlesex

Essex

Suffolk

Bridget Thornton - bridget.thornton@als-ma.org, 781-255-8884, ext. 239

Norfolk

Plymouth

Barnstable

Bristol

Shannon Sullivan - shannon.sullivan@als-ma.org, 508-963-5091

Berkshire

Franklin

Hampshire

Worcester

Hampden

 

 

Remember that our skilled staff of social workers is here to support you and your family every step of the way.  The ALS Association Massachusetts Chapter: Providing care today.  Supporting hope for tomorrow.